Responsible Genomic Data Sharing
  • Author : Xiaoqian Jiang
  • Release Date : 14 March 2020
  • Publisher : Academic Press
  • Genre : Science
  • Pages : 210
  • ISBN 13 : 9780128163399

Responsible Genomic Data Sharing Book Summary

Responsible Genomic Data Sharing: Challenges and Approaches brings together international experts in genomics research, bioinformatics and digital security who analyze common challenges in genomic data sharing, privacy preserving technologies, and best practices for large-scale genomic data sharing. Practical case studies, including the Global Alliance for Genomics and Health, the Beacon Network, and the Matchmaker Exchange, are discussed in-depth, illuminating pathways forward for new genomic data sharing efforts across research and clinical practice, industry and academia. Addresses privacy preserving technologies and how they can be applied to enable responsible genomic data sharing Employs illustrative case studies and analyzes emerging genomic data sharing efforts, common challenges and lessons learned Features chapter contributions from international experts in responsible approaches to genomic data sharing

Responsible Genomic Data Sharing

Responsible Genomic Data Sharing

Author : Xiaoqian Jiang,Haixu Tang
Publisher : Academic Press
Genre : Science
Total View : 7920 Views
File Size : 49,8 Mb
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Responsible Genomic Data Sharing: Challenges and Approaches brings together international experts in genomics research, bioinformatics and digital security who analyze common challenges in genomic data sharing, privacy preserving technologies, and best practices for large-scale genomic data sharing. Practical case studies, including the Global Alliance for Genomics and Health, the Beacon ...

Sharing Clinical Trial Data

Sharing Clinical Trial Data

Author : Institute of Medicine,Board on Health Sciences Policy,Committee on Strategies for Responsible Sharing of Clinical Trial Data
Publisher : National Academies Press
Genre : Medical
Total View : 9838 Views
File Size : 40,9 Mb
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Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include ...

Genetic Variation

Genetic Variation

Author : Michael R. Barnes,Gerome Breen
Publisher : Humana Press
Genre : Science
Total View : 9040 Views
File Size : 52,6 Mb
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“Your genome is an email attachment” What a difference a few years can make? In 2001, to a global fanfare, the completion of the frst draft sequence of the human genome was announced. This had been a Herculean effort, involving thousands of researchers and millions of dollars. Today, a project to ...

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Publisher : University of Oklahoma Press
Genre : Social Science
Total View : 2707 Views
File Size : 50,7 Mb
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In the early 1970s, the federal government began recognizing self-determination for American Indian nations. As sovereign entities, Indian nations have been able to establish policies concerning health care, education, religious freedom, law enforcement, gaming, and taxation. David E. Wilkins and K. Tsianina Lomawaima discuss how the political rights and sovereign ...

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Genomic and Precision Medicine

Author : Geoffrey S. Ginsburg,Huntington F Willard
Publisher : Academic Press
Genre : Science
Total View : 7187 Views
File Size : 43,5 Mb
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Genomic and Precision Medicine: Translation and Implementation highlights the various points along the continuum from health to disease where genomic information is impacting clinical decision-making and leading to more personalization of health care. The book pinpoints the challenges, barriers, and solutions that have been, or are being, brought forward to ...

Sharing Clinical Research Data

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Author : Institute of Medicine,Board on Health Care Services,Board on Health Sciences Policy,Roundtable on Translating Genomic-Based Research for Health,National Cancer Policy Forum,Forum on Neuroscience and Nervous System Disorders,Forum on Drug Discovery, Development, and Translation
Publisher : National Academies Press
Genre : Medical
Total View : 4213 Views
File Size : 47,6 Mb
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Pharmaceutical companies, academic researchers, and government agencies such as the Food and Drug Administration and the National Institutes of Health all possess large quantities of clinical research data. If these data were shared more widely within and across sectors, the resulting research advances derived from data pooling and analysis could ...

Genomic Data Sharing

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Author : Jennifer B. Mccormick,Jyotishman Pathak
Publisher : Academic Press
Genre : Medical
Total View : 4499 Views
File Size : 40,5 Mb
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Genomic Data Sharing: Case Studies, Challenges, and Opportunities for Precision Medicine provides a comprehensive overview of current and emerging issues in genomic data sharing. In this book, international leaders in genomic data examine these issues in-depth, offering practical case studies that highlight key successes, challenges and opportunities. Sections discuss the ...